poetry and prose posts by amylia grace

5.2.08

A New Vision

My earlier rant over at d365 provided a much needed outlet for my frustrations this morning, which I know came, in part, from my wrecked nerves leading up to my 2:45 appointment today at The Eye Institute. Like fellow blogger Kerri's nervousness last week over her eyes, I've been a wreck, anxiously awaiting my follow-up appointment with my ophthalmologist, simultaneously dreading the news yet secretly hoping for the best--yet afraid to let even the smallest glimmer of hope enter into my consciousness for fear of the devastating disappointment I'd endure if the verdict rendered would be worse than I'd hoped for.

Already emotional and nervous, my bloodsugar skyrocketed as I waited over an hour for my appointment, going from 143 mg/dl to 304 mg/dl in less than sixty minutes. Sheer adrenaline pumped through my veins as I tried to relax myself by reading gossip rags, deciding to set aside my book, Sweet Invsible Body, in favor of People and Star. Did you know Katherine Heigl was a Mormon?

Luckily, the news is good. The spot the doctor saw a few weeks back is completely gone. Nothing showed up on the many scans and retinal exams. Poof! Gone! Just like that! Sometimes that happens, he said. Could it be from more exercise? Greater vigilance? Less highs? Perhaps. All I know is that the pesky spot is gone, and I'm going to do all I can to make sure it stays that way.

I feel like I've been given another chance to get things right, further asserting that my decision to leave Taiwan in favor of better health care and peace of mind was the right one. Stress, the doc says, needs to stay at a minimum, and after I shared my desire to continue losing some of this excess weight, we challenged each other to drop a few more pounds before our next visit in six months. He is very down-to-earth (and short! and stout!) and shared with me how he wants to drop a bit, too, but then told me to go out and celebrate with pizza. I laughed and told him that pizza was the diabetic's worst nightmare food, and that I'd head to the gym and sweat it out instead.

So while I still live with the very real possibility of further complications in the future, for this moment I'm good. My retinas are healthy and clear of any hemorrhages or leakages. My eye pressure is great. My A1C is going down, down, down. A pump is on the horizon. For now, I have what is known as "Background Diabetic Retinopathy" (Non-Proliferative). The only symptom I have are a few very small dots (5 or 6), visible only upon elaborate testing, that are microaneurysms, or scattered red blood cells in the retina where tiny, weakened blood cells have ballooned out. The microaneurysms are not serious, not themselves a danger to my vision, but a warning sign that damage could occur in the future if things progress in the wrong direction. I can handle this, as diabetes and the host of complications it can bring are forever in the background of my vision, and always will be. I can live with that.

Tomorrow is my follow-up appointment at the Diabetes Clinic, meeting with the dietitian and a new CDE. I look forward to a serious discussion of the pump with the CDE. The time is nigh. I am blessed to be surrounded by supporters, though the burden of care is, and always has been, my own. It is a blessing and a curse to have full responsibility for a disease I cannot always handle on my own.

That said, today renewed my faith in the goodness of some medical professionals. My doctor at the Eye Institute is competent and compassionate. He is a kind man. My eyes betrayed me, welling up with tears, after he told me he was proud of me and that he can only imagine how difficult it is to manage type 1 diabetes 24/7 for nearly 20 years, beginning in childhood. I thanked him, letting him know that was the first time a doctor has ever acknowledged and validated my struggle and the accomplishments that go along with living life as a type 1 diabetic. That is both sad, in that it took so long, and comforting, for the fact that the moment occurred at all.

So a big (((hug))) to each of you who read my blog, and especially those of you who comment with some regularity, as your support and validation fills a void in me that has been empty for far too long. What a gift you are to me, and I thank you from the bottom of my heart.

20 comments:

Colleen said...

Oh my gosh, what wonderful, terrific, awesome news!!!! Did you do a dance of happiness?
I am so tickled for you!!

Jillian said...

Oh I'm so glad to read this news! Complications especially eye wise, always frighten me. I wish you luck at your appointments tomorrow. I'm glad you have a support network (medically and blog wise)that are here to help you in whatever way possible.

Donna said...

Oh Amylia, I'm ready to cry - with joy! Congratulations!

Sometimes God allows things to happen in our lives & we never know the reason why. So you may never know why you had this spot show up. Perhaps you writing about it inspired someone else to go get their eyes checked. But whatever the reason, I'm so happy God took care of the situation & you are fine. What a wonderful day!

Jen said...

WOHOO!!!
I think that's the most appropriate response. Congrats!

Jen said...

WOHOO!!!
I think that's the most appropriate response. Congrats- I'm sure that is a huge relief.

Courtney said...

Amylia,

It's great that your eyes are good. It's scary to have something in them one checkup but awesome to have it be gone the next checkup.

I hope that your appt with the new CDE goes in your favor as far as a pump is concerned, I know that it's something I had to fight for and prove I was ready for, hopefully it's something your CDE just plain agrees that you need and gets the ball rolling :)

Jill K said...

I'm so relieved for you, my beloved Amylia. I assure you, that the good dr is not the only one that is proud of you for persevering and for taking care of you (which is no small task!).
Today sounds like it was a good day. Miss you. Sending a big hug.

Allison said...

Hi Amylia- Just wanted to say hi and that I'm so glad you got the good news about your eyes.

:o) Allison

Araby62 said...

Whew :) That's great to hear!

My eye guy is amazing, too. I think he's the only doc I see who really appreciates the vigilance D involves. He's the most patient, professional and caring medical provider I know.

Oh, and I'm guilty of "catching up" on the celeb gossip myself from time to time ;)

Toni said...

What a huge relief for you! You're off to a great start in 2008. May this encourage you to keep it up, as it encourages many of your readers out there.

Craig said...

Glad to hear the good news!

Shannon said...

Yay!

What a nice comment by the doctor, too. He is aces.

Bad Decision Maker said...

thanks for posting and sharing all your experiences with this - it is really helpful to read and think about other people experiencing these D issues and "milestones", good and bad.

congrats on the good news, and congrats on finding a nice and competent eye doctor! i could use one of those myself. i feel like this is the month of eye stuff in the d-blogosphere - i've got my yearly check in a few weeks, and im trying a new opthalmologist because i was unhappy with my old one and i moved.

landileigh said...

i cried with tears of joy and relief. i love you, my friend.

Windy said...

Amylia, what Donna wrote gave me chills. I DID make an appt. with my retinologist because of reading your narrative on one of your D365 photos. Thank you!! I'm so glad your eyes are ok! =)

Amylia said...

Thank you to everyone for your wonderful comments! I am so relieved and feeling very blessed.

Cara said...

Hugs back to you to. You brighten my day! Every day!

Mandy said...

I'm so glad you had good news!!! Congrats!!!

Chris said...

So glad tpo here that the spot is gone. You can breathe now.... and relax. Keep up the good fight.

Scott K. Johnson said...

Another great post Amylia. You are a gift to all of us.

I was particularly struck by your line "It is a blessing and a curse to have full responsibility for a disease I cannot always handle on my own.".

Thank you.

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